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Johns Hopkins Medical Institutions
Enabling Research of Patient Data and Information within the Context of New and Changing Compliance Requirements
Nancy McCall is director of the Alan Mason Chesney Medical Archives of the Johns Hopkins Medical Institutions and a Research Associate in the Department of the History of Medicine of the Johns Hopkins University School of Medicine.
Since 2000 she has been studying implications of the Privacy Rule of HIPAA for archival reference and research. She has delivered presentations and participated in panel discussions on archival implications of the Privacy Rule at meetings of the Society of American Archivists and Archivists and Librarians in the History of the Health Sciences. In January 2005 she testified before the Subcommittee on Privacy and Confidentiality of the National Committee on Vital and Health Statistics on the impact of HIPAA legislation on the ability to access and utilize archival materials <http://www.ncvhs.hhs.gov/05111ag.htm >. Currently she serves on the HIPAA Committee of the American Association of the History of Medicine.
Catherine Arnott Smith and McCall are recipients of an NHPRC Electronic Records Fellowship (2005-2006). The title of their project is “Developing the HIPAA-Aware EAD Finding Guide”. The focus of McCall’s research is how EAD finding guides may be adapted to comply with the Privacy Rule of HIPAA (the Health Information Portability and Accountability Act) and how research of electronic documents that contain health information may be facilitated within the compliance requirements of the Privacy Rule.
The purpose of this presentation is to inform archivists and scholars how research of archival holdings may be conducted and how documents and research findings may be published within the context of new legislation and rulings on privacy and intellectual property. The objective is to demonstrate legally compliant modes of access and use of archival holdings which contain data and information subject to privacy and intellectual property laws. The goal is to show how open intellectual inquiry may proceed within the context of these laws. The focus will be primarily on how privacy and intellectual property legislation imapct research and publication in the health fields.